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The Other Face of Cancer by Dr Manu Kothari and Dr Lopa Mehta
Summing Up
In my experience, for what it may be worth,
it does not usually work out in the long run to be
seduced into telling the untruth.286 This
plea by a cancer doctor can be joined to a declaration
made by a cancer patient: The time to be honest
about cancer is now.287 And that has been
the aim of the book - to present a gestalt view of
cancer. Such an approach reveals cancer not as the
villain of the piece that deserves all the metaphors
listed by Susan Sontag 288 but as an
interesting, universal fact of biology that also affects
humans. This is not easy, given the might and the seeming
wisdom of the cancer societies and the cancerologists
backed up as they are by senators, lobbyists,
Benevolent Plotters, engineered columns in
the media, and the somewhat naive but widely held
view that science can make things come out as we would
like them to be.289
Facts, however, are on the side of a person wanting
to have a realistic approach to cancer. Cancer can be
understood - by the lay and the learned - to the point of
not fearing its occurrence, and should it occur towards
making the most out of life and getting the best out of
medical care. Toward this, we sum up here the
epidemiology/cause, diagnosis, prognosis and the
treatment of cancer.
The current epidemic 290,291 of epidemiologic
studies on cancer draws its sustenance from the
half-truth that tells you, for example, that cancer of
the mouth and throat has a high rate in India, without
letting you know that this highness gets
adequately compensated by low rates of other cancers.
This is equally true in Japan or Germany, Tripoli or
Timbuktu. In 1926 Cramer 292 pointed out that
the apparently greater mortality from stomach and
intestinal cancers in Dutch women was compensated by low
mortality from cancers of breast and uterus, seemingly
higher in English women. We reiterated this in 1973.6
Burch 293 in 1976 reinforced this is
conclude that this global overall consistency of cancer
in its incidence and behaviour reflects an intrinsic
human quality, for which no cancerogen need be
incriminated. It is time we are cured6 of
cancerogenophobia.290,291
Cancer patients are often overburdened with the
guilt that their cancer is a result of some acts of
commission and/ or omission. This need no longer be.
Cancerologists must reassuringly exonerate their patients
of any such guilt in the style of Godwin-Austen, 294
an English consultant neurologist and an authority
on Parkinsons disease: You must remember
first of all, Godwin-Austen 294 tells
his patients in a special booklet, that
Parkinsons disease has NOT resulted from something
you have done (or not done) in the past. It is NOT caused
by overwork or overindulgence, and it is very unusual for
Parkinsons disease to be related to injury of any
sort.
What can we say of cancer diagnosis when it
is now widely admitted 295,296 that such a
thing is always a late event in the course of the
disease! Diagnosis, is necessary when
a person comes with symptoms. However, the various cancer
screening programmes, most vehemently seen with reference
to the breast and uterine cervix, seduce into the
diagnostic mill a person otherwise completely at peace
with herself or himself, and often foist upon the
now-patient the diagnosis of cancer or a doubt to that
effect. A psychiatrist 297 points out that the
very word cancer implies, in the mind of the
common person, pain, disfigurement,
hospitalization, debts, inability to care for ones
family, dirtiness, loss of sexual attractiveness or
function, disability, and possible death, a complex
from which the most highly placed medical 298
men are not exempt. Susan Sontag 288 rightly
points out that Karl Menninger has observed (in The
Vital Balance) that the very word
"cancer" is said to kill some patients who
would not have succumbed (so quickly) to the malignancy
from which they suffer. Not surprisingly, Martin
Fischer81 proscribed diagnosis to
prevent a death sentence being passed by
a powerful physician 299 on a
powerless pa- tient.299
Comfort 300 has described anxiety-making
as a curious preoccupation of the medical profession;
unwarranted cancer- diagnosis represents one such
preoccupation. The so-called public awareness of breast
cancer can mean panicked parents rushing with their
frightened daughters to the detection centres, where
girls of 8 - 12 years of age, with asymmetrical growth of
otherwise normal breasts, may end up with a permanent
loss of breast because of misplaced diagnostic zeal.301
Screening programmes - described in medical circles 302
as successful business ventures and as
frankly commercial - have proved not only
useless but scaremongering, be it for cancer or coronary
artery disease 303,304 resulting in demands
for decently burying them.
The essential non-diagnosability of cancer has foiled the
technology and the machines of modern medicine.
Most of the tools of a doctor used twenty-five
years ago fit into a small black bag. Today the typical
American physician owns or has access to $250,000 worth
of diagnostic equipment ... Whenever one tries to link
the development of new technology with a coincidental
improvement in healing, the answer is always the same.
There is none.305 This media-assessment
is endorsed medically.306 Prognosis, the other
gnostic part of clinical cancerology, concerns
itself with what a cancer cell or a tumour will do to a
patient. The help of technology and machines has also
been marshalled toward this, with no gains. Computers
have been used to analyze cellular features, 307
only to be plagued 6 by the computer-jargon
GIGO - garbage in, garbage out. Grahams
assertion that cancer is inherently
unpredictable287 is not only so at the
gross clinical level as she wants to imply, but at all
levels. Regardless, la technique 308-312 presses
on: the recent report 312,313 on predicting by
at least three years from now the right
drug for a cancer patient by pretesting the drug
on the patients cancer cells grown in a petri dish,
is oblivious (a) to the inherently non-specific,314,315
toxic,316 and essentially ineffective317 nature
of cancer drug, (b) to the fact that in a
handful 318 of cancers against which the drugs
are effective, the therapy is attended by
unforeseen complications, 98,316 infections 319
and above all frightening uncertainty,98
(c) to the ability of the one and the same cancer
to be made up of more than one cell alone,6,20 and
finally (d) to the penchant of cancer cells to develop,
in no time at all, resistance 274,320 to a
given drug.
While on prognosis, a word or two may be in order on the
prognosis of cancer research, itself. Despite such
pessimists as Bier321 - all that we know
for sure about it can be printed on a calling card,
Burnet,5,15 and ourselves,6 the air
is full of tremendous optimism, as may be discerned from
Lewis Thomass latest asser- tion:322
What is new in medicine is the general awareness
that these (senile dementias, arthritis, cancer) are
biological problems and that they are ultimately
solvable. Cancerology never had it so good.
Greenberg323 has characterized such
proclamations as reminiscent of Vietnam optimism
prior to the deluge. Hope, however, springs eternal
in the human breast, and cancerologists are no
exceptions.
A common cancer hospital witticism, heard as often
from doctors as from patients, is "The treatment is
worse than the disease."288 Why should
doctors, of all, let out the truth? They, in fact, do not
do so as often and as loudly as they should, but their
actions, taken to mitigate their own cancer, betray the
truth that they know better the ravages of cancer
therapy. Many doctors have a strongly pessimistic
attitude about treatment of cancer,297
no wonder!
A study 324 undertaken to determine to what
extent doctors, faced with the prospect of having a
cancer, practiced what they preached,
revealed some startling facts: Doctors, the
disappointed investigators generalized, (a)
do not bother to seek an early diagnosis, (b) permit
unjustifiable delay before curative
treatment is started, and (c) choose as their
initial consultant a physician whose culpability for
delay is as great as that of a general- practitioner.
Doctors, the BMJ 325 recently editorialized,
investigate and treat themselves or their relatives
inadequately by conventional medical establishment
standards. The BMJ asked 326 the Director of
Surgery at ST. Marys Hospital, London, what he
would do if he had cancer of the rectum. His submission
is a revelation by itself: I am absolutely certain
- and this I am sure will bring the wrath of most
colorectal surgeons on my head, but no matter - I would
not have an abdominoperineal resection with a colostomy.
However, managed, however much we delude ourselves, a
permanent potentially incontinent abdominal anus is an
affront difficult to bear, so that I marvel that we and
our patients have put up with it so long. It says much
for the social indifference of the one and the social
fortitude of the other.326 Two leading
cancer pathologists confided to the authors that, should
they develop a cancer, they will consult the authors and
not any cancer specialists, but about this, "please
do not tell the public."
A la Sontag, 288 doctors invent varied
metaphors to demonize cancer and thus justify their
brutal therapeutic inflictions on their
patients. How do we cure doctors of this dilemma? Erik
Erikson 327 in Hippocrates Revisited offers
some sound advice to doctors in the treatment of their
patients: What is hateful to yourself, do not do to
your fellow men. It is time that doctors heeded
this invocation in full, and in the context of cancer
therapy paraprased it as: What is hurtful to
ourselves, let us not do it to our fellow men called
patients.
Just as diagnosis is imperative, for a
person who merits it (see earlier), treatment
is necessary for a patient dis-eased by cancer. Jory
Graham287 is quite right in that cancer is
more curable than many other disease. But the cure that
Graham refers to has to be understood before it is
advertised. In 32 years experience in the
USA, Canada, and Great Britain, I have never seen a
patient with internal cancer or breast cancer cured in
the sense the ordinary man understand the term cure -
i.e. to take a disease process away and never have it
come back.328 Let us accept that every
cancer is curable, because it is, always, careable.
And this ability to be cared for includes palliation on
the one hand, and life-respecting measures on the other.
The venerated cancer text, titled Cancer Medicine 167
reveals its true and glorious purpose when it tells
at one place329 that symptomatic
treatment of cancer constitutes the best
clinical management and forms the backbone of
any specific cancer therapy. Palliation, thus,
becomes the purpose of cancer therapy. And could one ever
talk of radical palliation? It is a sign of coming
change, however begrudged, 330 that mutilative
cancer therapy is getting replaced by conservative,
organ/limb-saving331 procedures. And this is
but a mode of life-respecting. The recent Hospice
Movement 332, 333 in the West reflects the
spreading acceptance of the fact that even a patient with
terminal cancer needs, above everything, the dignity of
being, both physical and mental.
The oceanic mass of facts on cancer - the
outcome of the devoted work of many scientists the world
over for so many years - may appear forbiddingly large to
permit a useful, practicable synthesis. The concepts and
the facts presented in this book speak otherwise - it is
possible to integrate the results of clinical and
experimental research into a perspectival view appealing
and comprehensible to the researchers, doctors, lay
people, and above all, the cancer patients. Set below is
the gist of the aforemade synthesis:
- Cancer cannot be
caused, cannot be prevented. About its affecting
you, adopt therefore a que sera sera
attitude.
- Remember that cancer
has been with mankind since ages and its
occurrence is neither a freak of nor a punishment
from Nature. Every cancer is a part of your own
self. If you must not love it, you need not hate
it either.
- Each cancer, before
it bothers you, or your doctor, has been with you
for a long time. Early diagnosis/treatment for a
cancer is a myth to be buried.
- For the reasons cited
above, it is not at all necessary for you to get
yourself screened for cancer. Bother yourself
about cancer when, and only when, it really
bothers you.
- Cancer does not
always kill, nor does it always connote a short
post-diagnosis or post-treatment life. Decide to live
with your cancer until it chooses to die with
you.
- Appreciate that
cancer need not necessarily disrupt either your
profession or your joie de vivre.
- Since there is
nothing like a cure for cancer, insist on being
treated symptom-far and no further. Any form of
therapeutic radicalism is despicable overkill by
medicine.
- Must you be treated,
seek surgery; should you be irradiated or given
chemotherapy,insist on the minimal and be
prepared for the cellular levy from head to foot
that your body must pay.
- You owe a duty to
your body and soul in the form of a dignified
death. Do not deny yourself the dignity of dying.
- Cancer is a species,
class, or ordinal character. You can neither
inherit it, nor pass it on to your progeny.
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