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Disability - Challenges Vs Responses by Ali Baquer, Anjali Sharma
By Way of Recommendations
Despite growing universal awareness of the
rights of people with disabilities, bold political
decisions and practical actions taken in several
countries, including India, in the form of the enactment
of appropriate laws, the plight of most disabled people
remains serious. Disabled people are, undeniably, the
victims of discrimination, marginalisation and of a
vicious cycle of multiple deprivation. Their situation is
"the silent emergency" of our times because
they are prevented from participating in the mainstream
activities of society. They may not be able to tolerate
this injustice for too long and have started to demand
their rightful status.
The following recommendations are based on authors
in-depth study of available literature on the subject;
serious consultations with several dozen well-informed
people; extensive interactions with a large number of
disability activists; practical and emotional suggestions
of disabled people themselves; expert advice of
professionals, administrators, policymakers and scholars:
- Priority should be
given to the prevention of disabilities, early
diagnosis and treatment of those identifie as
disabled.
- Priority should be
given to provide financial assistance for the
whole family in case of the primary bread winner
becoming disabled.
- Priority must be
given to poor persons with disabilities in all
poverty alleviation programmes.
- Priority must be
given to disabled women in all policies and
programmes aimed at eradicating discrimination
against them and helping their empowerment.
- Priority must be
given to steps which make society and environment
barrier-free
- Priority must be
given to strengthen the network of community
services to prevent situations of homelessness or
institutionalisation for disabled people.
- Priority must be
given for residential care (both short-term and
long-term) for those disabled people whose
parents/families are unable to continue looking
after them on account of their own ill-health,
old age or death.
- Priority must be
given to appointing a Union Minister for
Disability with separate and exclusive
responsibility for formulating and implementaing
of policies having positive influence on all
aspects of the lives of disabled people as well
as for coordinating, monitoring and evaluating
all programmes in the interest of disabled
children, men and women.
- Priority must be
given to the teaching of courses as well as
undertaking must be theoretical and applied
research on disability issues in all relevant
academic fields. Such efforts supported by
creating academic posts at all levels of teaching
hierarchy, in schools, colleges, universities and
institutions of distance education. Adequate
funds must be earmanked for this.
Information
- A National Resource
Centre should be set up, equipped with modern
technology, convenient and standard mechanisms
for the collection and dissemination of
information on disability issues, demographic
data, provisions and shortfalls of services for
people with disability, their socio-economic
status, employment, educational needs and
achievements, housing designs and house
ownership, etc.
- Specific arrangements
must be made so that people with visual handicap,
hearing defects and intellectual impairment have
direct access to information and they too learn
about the world around them; make use of
educational, employment, travel and entertainment
facilities open to the non-disabled.
- Information relevant
to the needs of disabled people (relating to
health, education, employment, transport,
recreation, legal rights, etc.) should also be
made available in Braille, on audio/visual tapes
and sign language because lack of information and
knowledge increases their problems of isolation
and marginalisation.
Legislation
- The Persons with
Disabilities (Equal Opportunities, protection of
Rights and Full Participation) Act, 1995 and its
Rules 1996 must be translated into all regional
languages and disseminated so that its various
provisions, benefits, etc. become widely known.
- Arrangements must be
made, either through statutory or voluntary
agencies, of providing support and interpretation
in legal and other representations to courts,
police, and other bodies for and on behalf of
disabled petitioners specifically the mentally
retarded, the mentally ill, the profoundly deaf
and the illiterate.
Media
- Coverage in
programmes must be increased in the electronic
and print media which promote positive attitude
towards persons with disabilities.
- Awareness generating
programmes should be promoted to cover issues
related to disability, schemes/provisions for
people with disability, educational facilities,
employment opportunities, potentials of people
with disability, etc.
- Distorted, negative
and inaccurate images of persons with
disabilities in films, TV serials, radio and
television programmes, books, newspapers should
be prohibited and positive and appropriate image
should be portrayed.
- News coverage in both
the print and electronic media must be made
sensitive to the real struggles of disabled
people - lack of education/employment and
inaccessibility to opportunities/information.
They should be portrayed as real people and not
as the objects of pity.
- Persons with
disabilities should be appointed to
decisionmaking bodies related to media.
- Encouragement must be
given to disabled writers, artists, makers of
film/TV programmes and others competent to
produce, make and exhibit programmes on
disability issues for generating greater
awareness and increasing knowledge of disabled
and non-disabled audiences.
Architecture
- Barrier-free designs
of public places, buildings, roads, footpaths,
transport facilities should be promoted and
renovation of old buildings should be done to
make them disabled-friendly and barrier-free by
providing ramps, wide doors, convenient
amenities, safe public places, etc.
- Barrier-free designs,
with the specific needs of people with sensory,
intellectual and physical impairments should be
made an integral part of the curricula of
architects, town planners and engineers, etc.
- Sign language
interpreters should be available in public places
for convenience of deaf persons.
Education
- Disciminatory
attitudes towards educating disabled people, with
their roots in traditions and unfounded myths,
must be replaced with progressive ideas and
practices supported by relevant research
findings.
- For the education of
children and adults with disabilities there
should be sufficient financial, technical and
human resources as well as adequate
infrastructure for providing education.
- There should be
provisions of teaching science, mathematics and
technical skills to disabled students in
secondary and high schools.
- All teacher training
courses should have the components of special
education and for children with special needs.
- Financial and other
incentives must be provided for teachers to
acquire special skills and techniques to manage
disabled children with special needs.
- Incentives and
transport facilities must be provided to parents
to send disabled boys and, more importantly,
girls to school and to complete their education.
- Appropriate supply of
adequate educational materials - Braille text
books, audio-visual assistive devices should be
easily available.
- NGOs and other
professionals, with experience in the field of
education of disabled children, must be involved
in preparing training modules for specific age
groups of disabled children in the different
areas of disability.
- Responsibility and
incentives must be given to established NGOs for
the training of staff in schools at the
district/block/village levels.
- Emphasis must be
given to the pre-and in - service training of
teachers and periodic follow ups must be arranged
to upgrade their skills and these should be
accorded due recognition/incentives.
- In all school
activities relating to disabled children greater
community participation must be encouraged and
facilitated through early interventions,
increasing knowledge and awareness of parents of
disabled children, setting up of parent-teacher
consultative groups to assist schools in
responding to the changing individual educational
needs of disabled children, organisation of
additional support for regular classroom
teachers, etc.
- Efforts should be
made to control the drop-out rates through
various incentive schemes such as government
programmes like mid-day meal scheme, financial
benefits to students and their parents,
residential schools, free uniforms, free reading
material, remedial coaching, etc.
- Integration of
children with special needs in general education
school should be systematically expedited.
- Sufficient care must
be taken that the present educational system for
disabled scholars, either through integrated or
segregated arrangements, which tends to justify
the continuity of discrimination, does not
produce a crop of socially and academically
handicapped individuals.
Employment
- New employment
opportunities should be identified and created in
formal and nonformal sectors, including the
cooperatives and self-employment schemes.
- Appropriate training
should be provided to persons with disabilities
to start and manage their own businesses.
- Conveniently-located
production centres should be set up to provide
economically active disabled people jobs.
- Efforts must be made
to prevent forcing suitably qualified disabled
workers accept poorly-paid, low-skilled,
low-status and unrewarding jobs in poor working
conditions such as job security, opportunities
for promotion and advancement.
- Sufficient attention
must be paid to the assessment and training to
those born with disabilities as well as to those
who have recently acquired a disability and
thereafter providing suitable job opportunities
to them.
- Low-interest loans
should be provided to persons with disabilities
so that they set up their own business.
- Employers must be
reassured that disabled workers can contribute to
their production and output and in order to
facilitate job opportunities workplaces can be
made accessible at low costs. Furthermore, they
must understand that impairment is not the same
as ill-health and disabled workers are punctual
and regular in attendance.
- Advertisements
offering job opportunities must be worded with
special care to include disabled candidates.
- Able-bodied workers
must be discouraged from expressing and
practising discrimination against disabled
colleagues.
- The current quota
requirements for disabled workers must be
honoured by employers and those fulfilling these
must be provided with inducements and subsidies
by the government and those ignorning it must be
discouraged with adequate disincentives.
- A task force should
be created by the government, with the help of
NGOs and private sectors, to provide specialised
help and sustained support to all employers in
the recruitment, training, morale building and
career development of disabled workers as well as
job orientation to disabled employment seekers.
Miscellaneous
- Continuous efforts
must be made by disabled people, and those
working with them and the relevant government
departments, to get more categories of disability
included in the Act such as those with autism,
hemophilia, Alzneimers disease, etc.
- Medical models of
categorising and assessing disability should be
replaced by social models and brought in
conformity with international definitions and
standards.
- Collective efforts
must be made by the entire society to fight
against the extreme social isolation of most
people with disabilities and their families and
through increasing opportunities for social
contacts and participation in leisure and
recreational activities.
- The barriers and
obstacles which prevent disabled people,
particularly disabled women, from participating
in political life of the country must be removed
and they must be encouraged to excercise their
political rights through voting, membership of
decision-making bodies from the village level to
right up to the Parliament.
The above recommendations
are, of necessity, only a selection and reflect the
extent of support systems that people with disabilities
currently require. These recommendations also betray the
seriousness of discrimination that disabled people face
throughout their lives. It is difficult to ignore the
ideology of community care or even community based
rehabilitation. These are addressed as much to the
government as to NGOs, international organisations,
funding agencies, academic institutions, scientists and
technologists, and people with disabilities and all
others who are concerned about disability issues.
Although there has been a steady increase in the funding
of services for disabled people, the actual financial
resources are not quite in accordance with their needs
and must be improved to avoid negative consequences on
the life of disabled people.
The most important message of this book is that disabled
people must not be regarded as "different" or
"aliens". Recent events in India have
demonstrated the limitations of single-disability issue
pressure groups and the advantages of inter-disability
self-advocacy approach. Such healthy trends must be
systematically strengthened. People with disabilities
must be actively and directly involved in the analysis of
the reasons for their long and miserable social
isolation. They should play a central role in formulating
policies of total integration; in designing specific
programmes of actions and in bringing about lasting
positive changes in their own lives characterised by
self-assertion, dignity and independence.
The problems of one out of every ten Indians should no
longer be deliberately or inadvertently ignored. The
indifference of nine out of every ten people is
overwhelming and suffocating for people with disabilities
and is humiliating for society as a whole. This chronic
and calculated indifference must be replaced with
understanding, awareness, enlightenment and purposive
action for the good of disabled and non-disabled people
alike.
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